Thanksgiving Every Which Way

As a young friend of mine pointed out recently, it is highly amusing to consider that we spend a whole day being thankful for what we DO have, and the very next day, we stampede stores at dawn so we can buy all the things we DON'T have.

But aw, what the heck. It's cute. As long as it's not ME who is in any line anywhere any time before 10 a.m. rather than lounging around at home, putting off important tasks while sipping on my mason jar of coffee.

Bill and I just wanted to say that on this day we are thankful for: (Interruption)

Bet you thought we'd go one of several routes right there. GUESS.

Bill and I just wanted to say that:

(A) on this day we are thankful for doctors and smiling nurses;

(B) on this day we are thankful for starting the 4th year of stayin' alive;

(C) on this day we are thankful for being almost in remission;

(D) on this day we are thankful for chemo being over;

(E) on this day we are thankful for 1/3 of our children being with us;

(F) on this day we are thankful that the other 2/3 stayed away if they can't act nice JUST KIDDIN;

(G) on this day we are thankful for, okay, list is getting too long, let's get to the end of our guessing game....thankful for hedgehogs, parmesan cheese, conestogas, the word "gubernatorial," penguins, wasabi almonds, cute puppies,  manhole covers (EXTRA thanks for those!), ladders, spare tires, and those little gadgets that break the glass if your car goes underwater.

If you picked (G) you were correct. But you were also correct if you picked any or all of the other ones, but you FAILED THE TEST COMPLETELY if you didn't notice that one blessing was missing: chihuahuas dressed up like Paris Hilton.

No. Seriously, now. One blessing was missing: you.

You are what we are thankful for today with every heartbeat, every breath, every laugh, every, okay, glass of bubbly, every bite of turkey, and every smile.

YOU are the best friends we have ever had in our entire lives, and THANK YOU for the joy you carry with you wherever you go, most especially into our little corner.

Happy Thanksgiving. We love you.

Sorry About That Last Blog: Here's the Correction

I guess I crossed over the appropriate "Line of Bleak" in the last post, so I'm getting rid of that post. You can feel free to delete it from your inbox. I apologize to those of you I inadvertently upset.

Here's the new cleaned up report:

Hi everyone!

Thanks for reading the blog!

Bill is stable. No news. We're having a scan soon at Wake. I'll post the results. Till then, we look forward to Bill feeling a little better each day, now that his 12 weeks of chemo are over. No further plans exist right now for treatment. After Wake, we will know more, and I will post.

Love to all! Hugs!
Diamond Lil and the Cowpoke :)

The Sunday Update

I haven't posted because not much is new. We are on a repetitive pattern through mid-November of weekly chemo (carboplatin and taxol), and the occasional extra bag of water or magnesium. Bill's lows are much less low, the farther we get from the Doxyrubicin days. His hair is grown back in. It's suddenly very thick and very fine and platinum but with black hair mixed in. It's curly on the sides and straight in the back. Even his goatee is back, along with eyebrows and eyelashes. He's quite happy about this.

He's got small ongoing bodily weirdnesses evidencing themselves from time to time, but no one seems worried, so he just rolls along. His mornings are kind of horrible, but his afternoons and evenings are almost normal.

As for me, I went through some kind of neutron-bomb burnout for a few weeks, and now that it has passed, I see that it was a healthy and necessary development and that it brought me into balance. Before The Burnout, I think I cared too much about every little thing. After burnout, I care just the right amount, instead of too much, and now I can deal with it WITHOUT the obsession I had before. The result is a less fritzy caregiver who is less hysterical all the time, and who can now proceed calmly (MUCH more calmly than the first three years).


Farewell for a while. I'll write in a couple of weeks, unless something dramatic happens. Love and gratitude, from you know who!

PS For the praying folks among you, and the others, if you wanna give it a shot: please pray for our faithful friend T, a brilliant teacher and gifted, loving leader in Bill's church, and truly a saint, who is having rather monumental surgery on the 25th. And if you could, please pray for his wife, A, who has stood by us, as if we were her own blood kin, ministering to both Bill and to me with emails, letters, books, cards, pictures, home made custard, just love bombing us all these years of Bill's illness. Thank you soooooooo much. Bill says if you only have time for one prayer that day, make it for T and A--you can skip Bill. :)

MEH . . . .

(This preamble is by Beth. I am french fried, circuits blown, burned out, burned up, exhausted, and falling down on the job. But don't feel sorry for me; feel it for Bill. Bill is going through it too, and he's got cancer and chemo, in addition, on HIS shoulders! So tonight Bill wrote the blog for you. Here he is.)

Bill here.  Short entry tonight--Beth's  having a truly lousy reaction to yesterday's flu shot, and I devoutly believe in taking care of the caretaker.

Chemo today, preceded by a chat with Onco Bronco, who was actually very helpful.  The CT scan report is in from Wake, and all is okay, if not great:  the tumors (turns out there are two, not one) have *not* grown, so the chemo regime seems to be working.  For those of you keeping score, today's was the fifth round of twelve drips, dragging on into grey November.

Early tomorrow, I go to the hospital to have them fiddle with my "power port," the surgically-implanted device in my shoulder through which blood is drawn and chemicals are injected.  The problem is that stuff goes in, but blood doesn't come out predictably.  Have no idea how they fix that.

As Beth always says (and means), your prayers  are the bar which permit my occasional chin-ups.  Inexpressible thanks and heartfelt love for all you do for us.

Ever,
Cowboy Bill (for Diamond L'il)

Sept. 9, 2012: Sunday Update

We're celebrating THREE YEARS of cancer survival since Bill was diagnosed about this date in 2009. He has beaten every odd, all along the way. He has been given "months" to live for so many years that it's funny. And we (okay, my much-loved atheist friends can look away for a second) KNOW that prayer is part of it. (Okay, atheists, come back. And yes, I was reading excerpts from Atheist in Chief Christopher Hitchens' post-mortemly published book Mortality, about chemo and cancer and life and death, and yes, I saw what he said about prayer, and he was entitled to his opinion, but we're all about not disrespecting, 'round this here corral.)

Only news is that tomorrow morning VERY early, the cowboy has to go to Wake (Diamond Lil at the wheel) for a CT scan to see if the current chemo drugs are doing a Chuck Norris on his tumor.

I do not have ANY idea when we will have the results, tho if it were up to me, I'd sit down right there and wait two hours till the radiologist had that thing typed up. But Bill's a different breed; I got a $20 bill says he isn't going to let us wait. He'll say what difference does it make, anyway. And I'll go along with him, cause he's so cute with no hair. (He's got this super adorable baby fuzz coming in where he used to have hair. It's platinum white, and about 1/8th of an inch long, and looks awful cute when the sun hits it. My foxy boy be struttin.)

We will NOT see the Onco at Wake due to Madame Boone Onco Bronco having set the appointment up (a) late; and (b) completely weirdly. I'll skip that. But this causes us to not get the results till possibly Thursday, his next chemo time.

(If you ever go over there, you want Dr. Gray. He and everyone there is/are superb and beyond perfect and on top of his/their game/s. But I'm entitled to my opinion that there is one exception to this superb perfectness. Now, moving along...)

I also do not know what will happen with each possible outcome--I mean, if the tumor is or isn't responding, I don't know what the next move will be. Of course, if the appt had been set on time and correctly, we would have met with our Oncologist at Wake last week for all this, at which time he would have given us the results and discussed all the scenarios and choices, but noooooooooooooooo.

Maybe I'll get my way, and we'll get the radiology report tomorrow by waiting a couple of hours. Either way, YOU KNOW I will post as soon as we know anything, so if you don't hear from me till Thursday night, you will know: (a) I won my $20 bet; (b) I am unimpressed by a certain Madame So-and-so in Boone.

Goodnight, and thank you as always for praying, caring, reading, supporting, loving us! xoxo Beffie and Billy

Sunday Update: Bill is Pretty Darned Okay

Sorry I skipped posting for a while there. I started feeling like all I was doing was whining and upsetting everyone. Ooops! But you have to admit: I've been known to be a drama queen! :)

So just this quick note of update: Bill is doing fine. He had chemo on Friday, even tho he had a fever and some medical issues. We are now waiting for his nadir day to kick in, his lowest day. It should have started tonight, but it didn't, so either it will hit on Monday or Tuesday, or it won't hit at all. We don't know, but we're happy he is feeling decent. Not GOOD, but decent.

Next event: A CT scan at wake to see if this chemo is working, and if they should continue it or try something else or who knows what. No more chemo till he gets that scan. I'll report as soon as we hear a date for that!

Next time I go with Bill to Wake for a scan and any kind of "report" from a Dr., I have to have a special prescription for one whopper of a sedative. The last time I tried it on my own steam, and I almost went crazy with anxiety, feeling panic and tearfulness and terror all day. It was unprecedented. I used to be so brave. I had to call my brother in Morehead City to talk to me, until I could calm down while Bill was in for his CT. It has become almost unbearably upsetting to go there. It used to be interesting. Now it is terrifying. For me. Bill is calmer. Next time, I hope to be half asleep through the whole thing. I am not designed for drama, fear, and terror at THIS level!

Bill's symptoms now: Mainly fatigue, low grade fever, digestive troubles, shaking hands, numb feet, hair loss, and rapid weight loss. Even steroid appetite stimulants that make him eat almost every hour, and a LOT of food, and high calorie food, couldn't stop the weight loss. He lost almost 3 lbs last week, eating at least 8 to 10 meals a day! About 30 pounds in the last few months! But he isn't yellow or white or sick looking, too much. He is ready for his hair to come back, though, curly, thick, blonde and gorgeous. Can you see him with curly hair? It happens a LOT with chemo! His beard is gone, eyelashes, eyebrows, has a little bit of moustache left. Poor ole cowboy! He's still awful cute!

Thank you for caring, and I hope this lets you not worry about him for now. I will always post if a dramatic downturn occurs! But I should follow my Sunday rule and always write on Sundays, just so you know not to worry.

Love and hugs and thanksgiving for your thoughts, prayers, wishes, and good hopes for our boy!

Bethie and BillyBob the Cowboy

Cowboy's Mystery Fever & Caregiver Whack Attack!

Wow, how to keep this short. Ummmmmmmmmmmm.

First, delete the above sentence. Then delete these two sentences.

Okay, today was scheduled for chemo, but when we got there, things were weird. First, our oncologist has gone in the fashion direction of a POLE DANCER, in that she has suddenly dyed her dark brown hair platinum white (which failed and yielded orange hair), gotten a sexy tattoo on her breast, which IS revealed by her low-cut clothes, AND today she was wearing (I'm not making this up) 5 inch stiletto heels upon shoes that were SEVERELY RUBY RED and FRIGHTENINGLY SHINY and did not match her outfit at all. We are wondering if she's been sniffing the chemo.

But! She agreed with us on all points today, so I actually kind of liked her. The way one likes the aesthetics of, say, a carnival.

She agreed that he did NOT qualify for chemo today. His fever is STILL around 100, even now and after antibiotics, ruling out a bacterial infection (thank God, because the death rate is 20 to 50% for people in his category if they get blood bacteria), BUT he now has a fever of unknown origin. And feels like the dickens. So he got steroids and anti nausea IVs and TWO HOURS' worth of IV water, because his blood pressure is mysteriously low. He was pretty crabby about the water taking 2 hours. He said he could have drunk that same bag of water in 5 minutes and what the heck were they thinking taking 2 hours to give him water?!!!!

My feisty cowboy.

We will be notified of his Wake Forest date for a scan to see if chemo is working, but don't know when. He gets chemo next week for the last time till they scan him.

As for the Caregiver, she had her first Caregiver Mega Nuclear Meltdown on her birthday, Aug. 22. Bill had been so sick for 3 days, with that ever-creeping fever, and caregiver was going without sleep, then spent stressful day at clinic, unable to fix the fever, then that night the caregiver's mother called [....deleted by Beth.] This phone call caused caregiver to have a complete meltdown, and spend all of the next day and a half (caregiver's birthday) in bed, alternating between crying and sleeping the WHOLE DAY in a wild, unmanageable state of complete depression.

So if you sent that caregiver (me!) a birthday message or card, please know that I have waited until I have finally become myself again, to celebrate my birthday, and will soon read and reply to the wonderful messages and cards and even presents!!!!!

Well, that's about it. But I may post SHORT but frequent updates, like every few days, if the drama of the fever and other Cowboy problems don't resolve. Otherwise, I'll put up my almost-regular Sunday report of just general catch-up info.

Thank you thank you thank you for reading all this and caring, worrying, praying, loving, and/or thinking good thoughts for the cowboy. I'm making use of the leftover pieces of good wishes. :)

Love you all sooooooooooooo much!
Bethie the Whining Caregiver and Cowboy Billy the Brave Cancer Fighter

Home--Infection Still a Mystery

(this is copied from my facebook page, so you may have already seen it there.)

Home now, with mega-antibiotics and continuing fever. Bacterial cultures take minimum 18 hours to grow, so won't know the cause till then. And if it's a virus, we'll never know. 

At least, NO hospital, which he hates so much he says he would have refused it.

But his fever is going up right now, again, and his blood pressure has dropped dramatically, below the safety zone--they don't know why--and his heart is slightly racing at 100 bpm while he's lying down resting. 

Apart from THAT, Mrs. Lincoln, how was the play? 

Oh, and they don't think he will qualify for chemo on Thurs.

"Wow. This is FUN!" said no one ever, at any time, in any state of sobriety or intoxication.

I'm crawling under my covers and hide now. K. Thnx. Bye.

Cowboy Going to Oncology Evaluation This Morning

After hemming and hawing about hospital or not, after Bill's fever finally reached hospital level, it suddenly went down to the mid 100s, (For you believers, I had just laid my hands on him and prayed and during that minute, his temperature dropped by a whole point, not a tenth of a point! For you atheists whom we love equally, it was just a post hoc ergo propter hoc mirage, but we liked it!) so he decided not to go last night. Yes, we said our thank you prayers!

So last night I called the chemo clinic (which is not 24 hours--open only business hours) and left a message for their UBER-COMPETENT Head Nurse, Paul. He's the best! He called back before they even opened this morning,  at 7:45 a.m. (I had phone by my bed in hopes he would call) and said, "Get him in here!"

What relief I feel, and Bill does, too. He will be seen! Paul suspected that my "google diagnosis" was correct--febrile neutropenia--where all the white blood cells disappear and a fever arises and potentially sepsis aka blood poisoning, and it is very dangerous. My reading says 4 days of antibiotics by IV, until the white cells return, but maybe he can just get drips at the clinic and avoid the drama of a hospital. We're getting ready to go, as soon--as he stops the dry heaves. (It's a laugh a minute over here.)

I'll update. I love you all, and I'm holding your hands, and Bill would be too, if he thought of it.

Monday: Hmmmm.

1. If you are getting a feeling of depression or disturbance from reading this blog, and would like your name taken off the circulation list, don't think you'd be hurting my feelings or Bill's!  See, I recently read an email from a beloved friend, saying her husband's cancer was back and surgery was needed, and I burst into tears and was upset for two days, and still am upset, when I think about it. Only then did I realize the price you might be paying for reading this blog about Bill. Perhaps I should also consider not telling you everything, because it could be really messing with your head. Sorry that I was insensitive to that, before. I have these blind spots (Cliff, I'm still sorry about the booger joke.)

2. Bill felt a little better this morning, but tonight his fever is at an all-time high, still below hospital level, but VERY close. This led to some discussions at midday about graves and funerals that left us BOTH bedridden for the WHOLE rest of the day-- him with his illness, me with depression. He also is battling depression now, and considering getting a scrip for anti-depressants. I already tried that, and was still depressed, and they DOUBLED my dose, and I'm still depressed. But it's a natural kind of depression, very much "part of life" kind of thing, even organic to life, I think. So it's not that bad.

3. Next event: Thursday, he meets the local oncologist, and will get his blood tested. I think he has neutropenia, which is insufficient white blood cells. There's a treatment for that, but it requires pain medicine for about 3 days, at a level of pain-killing that we do not have in the house. He'll need a special Rx for that super-intensive pain med, if he gets that shot. Then he has to decide whether to take the 3rd dose of chemo that day, and 9 more weekly shots after that. At this rate, he's thinking he might stop chemo, at least for a while.

So really, nothing new. But I promised a Monday update. Sorry I broke my new Brevity Rule! Next time, maybe I can do it in 3 sentences again.

Love and gratitude,
B&B

Three Sentences (Depending on How You Count): More Tomorrow

Bill had a difficult day today, and has been struggling with fever since last night, and hovers within .4 degrees of having to go to the hospital, but manages to stay under the cutoff point.

He has been 99% bedridden this weekend, and I bring him everything he needs (he calls me with bells).

By tomorrow, he should feel much better and be able to walk around in the house a little bit. (THANK YOU for checking in and caring and praying and thinking of him; I'll post better news tomorrow, I'm sure!)

Love you all!

Beffie and BillyBob

ChemoMarathon! Longest Session Ever!

Today, Bill had the longest session of chemo he's ever had. It went so long that we were the last people out, and they had to stay open till after 6 just for Bill (not his fault) when, normally, they close at 4:30.

He believes they did several kind of stupid things that made the session take twice as long as planned. He was kind of crabby to the nurse! She understood. But he was pretty upset at how long we were there: 1 pm to 6:30-ish. At least he got to sleep through most of it, in a huge barcalounger. ha. I had to sit on a hard chair and WOW WAS I SICK OF MY LAPTOP BY 6:15 PM. Whew! Never wanted to see email or facebook again in my life. haha

More to the point: His blood was goofed up today, so he had to get a giant magnesium drip which took forever, and then his port wouldn't work, so they had to use his veins, then the nurse accidentally smashed his finger in the chair tray, and it was quite the day.

He says he doesn't care if I'm with him there or not, but when I took a 45-minute walk outside, he clapped his hands when I came back and said he was so happy to see me and that he missed me while I was away. hmmm. How to interpret that...

He feels normal right now, from anti-nausea drips and steroid drips, and will feel decent until Sunday, his low day.

Next week, on Thursday, he gets his 3rd round. Then we go to Wake Forest (don't have a date yet) for a CT scan to see if this chemo is working. If not, maybe he quits it then. Or they try radiation or something. Not sure. If it is working, then he continues 12 weeks of this, once a week. I don't know how he is standing it. He looks really like a sick person now, and can hardly walk, except for odd bursts of energy, during which he once even went to the grocery story briefly!

I wont put up a post unless there's something to tell you about. So maybe I'll skip the Sunday post and write on Monday, so I can tell you that he felt bad on Sunday but is all better by Monday, without worrying you on Sunday.

We both continue with massively gigantic gratitude for your going through this with us, and caring, and praying or thinking or wishing or whatever you do. Love is love, and we feel yours. Hope you feel ours for you!

Gnite for now! Kisses and hugs from the Chemo Corral.

Monday's Tiny Post: TODAY WAS BETTER!

Just an anxiety reliever note: Bill felt MUCH better after a rocky start this morning! He is still too exhausted to walk very much, but he even felt good enough to sneak out (against Dr. Beth's orders) to the STORE and bought some stuff! What!?????? Then he had to rest 4 hours, but that's how much better he was! I wanted to share my relief with you, so you wouldn't remain bummed out about yesterday. Thank you for your thoughts, wishes, PRAYERS, love, and for being our friends!
Love and gratitude,
Cowboy Bill and Diamond Lil

Sunday Aug. 12 Quickie Post

Bill said not to go into it. Not sure why.

But he had SUCH a bad day today, starting at 4:30 a.m., that he said it was the worst day he has ever had since chemo ever began, even before his surgery.

I have never ever seen him this completely sick from chemo. And just when we thought it was going to be a breeze, as we expected Saturday to be the bad day, like it has been for months now, but turns out Sunday is the tar pit.

He said if tomorrow he isn't significantly better, he is canceling chemo.

Not sure what that means, but he said not to talk about it, so I won't. If I could, I'd have a lot to say.

I'm starting to think that whining on this blog is tacky. I know a lot of sick people, and none of them whine on a blog like this.

I better just go to sleep. It was not a day I'd ever want to do again.

Love to you for reading all this junk all the time. And for praying and loving our poor boy.

G'nite.

Fast Report on First Chemo

Nothing to report! We were there from 11 to 430, due to a malfunction of his port, but they fixed it. They dripped in the two new poisons--Carboplatin and Paxitaxel, aka Taxol--and handed me all the sheets of warnings which were 5 pages of warnings for each drug.

And now we just wait. He's loaded up with anti-nausea and steroids tonight, so tonight was great. He even sat and TALKED TO ME for a whole hour! I never get THAT much time from him! Yayyyyy! I was very happy!

Except that we did end up on the subject of funeral homes (I'm against them; he's for them) and buying burial plots or was the backyard legal (he refuses to be cremated) and did we know anyone who would make a coffin (in his old church you were supposed to be buried in a coffin handmade by a church brother or sister) and where in the world could he be buried where I could visit him every day and, I'm against embalmment and he is for it, and I'm for the old Orthodox practice of reading Psalms over the person the whole night after they perish, and then burying them unembalmed the next day, and he thinks that's crazy altogether, and then we flipped it around to what if I die first, in, say, a car wreck, then what are MY preferences, and wow, see, these are the kinds of conversations you start having at a certain point.

GULP.

But back to the chemo thing: So for 7 days, I record in a notebook his reactions, then thereafter, we know what to expect each day of each week. I'll post as soon as any reaction happens. The night of the reaction, I will post, so if I don't post, it means nothing happened. We don't have the least idea what to expect any more, all new drugs.

See? I had nuthin to say! Thank you for every thought, every beam of love, every prayer, every hope on his behalf. We love you like kwayzeeeeee.

Sunday Night. New Chemo Starts This Week

Sorry I forgot to write more after the last blog. This week has been difficult for Bill emotionally, and for me at least as much. There are so many things I could say, but not on a blog. There are more facts than I can share on the blog, too, so there are things you just don't know or can't know or something. It's becoming difficult to really tell the story any more.

How to Blog for a Stage 4 Cancer Patient 101: I missed that class.

In summary, we had an apptment with the Boone Oncologist this week. She was VERY nice this time, but while trying to be nice, she accidentally upset us both. We mentioned that Bill had a bucket list. She asked what it was. He said, visit Vermont, visit Wisconsin, see the Pacific.

Well for the rest of the visit all she could do was say over and over and over how he should do that now, he should delay chemo, he should NOT wait till November, he should NOT wait till the next 12 weeks of chemo are over, he should go, go NOW, GET PLANE TICKETS TODAY, it gets COLD in Vermont, the Pacific ocean gets COLD (she's actually saying all this). Yep, I sure would go NOW. I sure wouldn't wait. I sure would buy those tickets TODAY. And so on.

When we got out, I said, "Bill, did you get the same impression I did from the doctor's  'Don't delay that bucket list!' speech?"

"Yes, unfortunately, the message came across loud and clear."

I said, "Are you sure you don't wanna buy some plane tickets today and put off this chemo?" He said that he feels so ill that even if he waited a month to start the new program (no more red devil, at least), he just feels too ill to travel, so his idea is to finish the 12 weeks and recover from that, and THEN do the bucket list.

Changing the subject: the new chemo is carboplatin and taxol once a week. The two drugs are so often paired that they are called something like Carbo-Tax. Sounds like something Congress might come up with to fix the budget.

Anyway, he doesn't qualify for a full dose, so his reactions should be much better, she said. It does all the same side effects: hair, nausea, platelet disorders, immune compromise, etc. and Carboplatin dramatically increases your chance of getting leukemia in 20 years. Oh! Great!

But both drugs have been approved for bladder cancer, even tho there is no study showing that they have any effect on bladder cancer. It's just a pot shot, but Bill's been Mister Invincible so far.

He said, "I'll show everyone. I'll be the statistic that lands outside the regular statistics."

That's the fighter attitude that I think he should have, and will help his immune system, they say.

The hardest part of this week was that he finished writing his obituary and sent it to me by email. He even included a photo so I wouldn't have to dig one up.

If you haven't experienced reading your spouse's obituary, let me tell you, it hits a place in your gut that doesn't really get hit any other way. Ow.

And it leaves you with such an in-your-face reminder that this is a great man, who has lived a great life, a heroic life, a moral life, a hard-working life, a holy life, a life of kindness, generosity, charity, prayer, peace, and love, pulling himself up from some tough beginnings all the way to laurels of greatness being placed on his head by colleagues and even by the world.

And the fact that some little bunch of rogue cells has the power to knock out a life as great as my cowboy's just seems like science fiction to me.

Back in the days when we never thought one of us would show the other his or her obituary, we used to read the obits, and they always say "after a courageous battle against cancer." And we used to say that if one of us got cancer, we'd want the obit to say, "after a cowardly battle against cancer" just as a joke for how they ALWAYS say "a courageous battle."

I asked him why he didn't put in the joke. But I already knew. It doesn't seem funny now. At least, he didn't put in "courageous battle with cancer." He put "extended battle with cancer."

And to me, that's a victory. Extended means he's made it a long time! He is still with us, and there is still hope, and he has beaten so many odds to still be here, that it's truly astonishing. And he can beat some more odds, too.

Anyway, there's your obituary humor for the day, if that's not a self-imploding oxymoron.

I'll post again Thursday evening, after his first chemo. Thank you for loving us through this crazy mess, and praying us through, most of all.

Scan results, short form, from hospital

Medium news, not good, not bad. Tumor is still sitting there, but hasn't spread. Oncologist thought it was bigger. Radiologist thought it was smaller. Not much size change. Bill is still considered incurable and this is still considered palliative care, meaning extending his life but not curing the cancer, is no longer the aim. Haven't read path report yet, but the bottom line was that while they were watching some areas, there was no evidence of new metastasis!!!!!

They can't continue the red devil as it is too dangerous to heart, and he needs one more week off before starting new chemo. Then a scan in a few weeks to see if new chemo is working.

The Oncologist here, Dr Thomas, wished the tumor were gone or noticeably smaller, but said on the optimistic side, it could have grown triple size if not for the red devil, so no way to tell.

He confirmed that there is  no test showing any chemo that works on Bill's kind of cancer, so that's a downer. But they are just throwing things at it to keep fighting to keep him alive. Cancer tumors like Bill's are so smart that they adapt to chemo and become immune to it! So they have to keep switching.

I asked if it he agreed with months to live versus years, and he said yes, he agree but he was acting upbeat and said, you know, all kinds of good things can come along, such as let's be happy that the tumor didn't grow rather than scared that it didn't get hurt as much as they wanted from the red devil.

In short, couldve been so much worse. We are rushing right now to go home, so I'll write more tonight after I read the radiology report which the Oncologist hasn't read all of yet. Talk to you tonight. Your prayers and love are surrounding us. Thank you sooooooo much, and I wanted to share this kind of good news of today's report, even tho Bill is being a brat about telling me to hurry up. hahahahahah Love you all! I have not proofread this, so don't hold typos against me. We're happy overall! Cdve been bettter, Cdve been much worse, tho.

Sunday: Monday is our HUGE LIFE-CHANGING DAY!

We just finished having the greatest weekend imaginable. Bill's daughter/my stepdaughter came Friday night and stayed with us till this afternoon.

Emma was an absolute joy. She is so FUNNY, and SO beautiful, and has a calm spirit, and she and her dad and me (I tried to judge how much time to give them alone and how much time to join in) had the most relaxing weekend, with a lot of sitting outside in white Adirondack chairs in my crazy Dr. Seuss garden (bizarre flowers, butterflies, and hummingbirds going in every direction) just talking.

Last night, we went to dinner at the 5-star restaurant in town (Jimmy Crippens' for my North Miami friends who knew Jimmy there), and it was SO GOOD. Then we came home and sat under the stars and the three-quarter moon till way past dark, surrounded by crickets, while Emma gave us the most magical trip back through her childhood in our family, telling us every great memory she thought of, and reminding us of the fun, funny, crazy and silly things we did as a family.

As Emma talked, Bill and I went into a state of transcendent bliss. As parents, there is nothing you want more than to know that your parenting "took" and that the decades of effort you gave to creating an enchanting childhood for your little ones are recalled as delightful to the children you did it for.

Neither of us expected such an evening. We are still going over and over everything she said, as she's now driving back to Richmond, and we are both finding little tears of joy falling at the gift this child gave to us last night.

As you can imagine, Bill is feeling that his whole life has been validated, his whole career, his every labor, by having helped to raise this beautiful, loving, wise, intelligent, compassionate human being who loves us as much as we love her.

I'm not sure we've ever had such an incandescent experience in our lives as last night.

She wasn't even trying to "make us feel" anything. She was just reminiscing, and we were given the gift of sitting under those stars together, the three of us, while she did this, letting Bill hear his whole history as a father going past on Emma's words, like cricket songs passing through the garden on a little choo-choo train track, each train car being one more story connected to one more story, to one more story, all from our family history, remembered for us by Emma.

Did she know what she was doing? Did she know she just fulfilled her father's entire life last night? Maybe. Or does love have a way of finding the exact little train track it needs to find, through the exact garden, on the exact starry night, at the exact moment in time?

But on to less luminous adventures: Tomorrow we leave early for Winston Salem, and by 2:30 (or 4 if the doctor is late), we will know what is inside Bill's torso. They aren't testing anything but shoulders down to pelvis. I wish he could have a tip to toe scan, but maybe it's a Medicare cutback.

And no matter what the scan shows*[see note below], he starts 12 weeks of chemo three days later, taking us into November. We will probably be more assertive in getting the doctor to give us a "how much time" prognosis tomorrow, even if Bill chooses to step out of the room. I have to have FACTS to go through this MY way, and I will fight for them if I have to.

Plus, if Bill is tumor-free, then that's a new remission. If he's not, well, maybe the next chemo (all new stuff) will knock back any tumor.

Tomorrow's scan results will go up the SECOND we get home (7 or so). I don't have a phone with which I can post from the car. If POSSIBLE, I will open my computer briefly at Wake Forest after we get the results, after 2:30 or so, and I could post a blog entry of a sentence before we start the drive home. We'll see. If we're stunned with bad news, we might even spend the night in Winston and drive home Tuesday when we're not both in mortal shock. We just don't know what to expect. Either way, a blog will appear by Monday night.

*[Here's the ending note: There is a configuration of facts that would cause Bill to stop the chemo and enjoy the time he has, with nights like Emma gave us last night, via Hospice at home and the famous Hospice no-pain cocktails. We'll let you know, of course.]

THANK YOU FOR EVERY TINY THOUGHT AND PRAYER. YOU ARE IN OUR HEARTS CONSTANTLY.

And thank you, Emma, more than you could possibly understand.

Sunday: Can Beth Write a One-Sentence Blog?

It's Sunday, and even though there is nothing to tell you, I'm posting so you won't worry, and the only thing that's been wrong has been severe nausea (and some other things I can't mention on the blog just for privacy's sake) and now a low fever of just under one hundred, but these are normal for the weekend after a dose, so now you know it's possible for Beth to write a blog that is only one sentence long. Wow! (SHOOT! I BLEW IT!)

New Info, But No Drama--Maybe

That there is a pitcha of me an cowboy. I'm the white dog who can't quit kissin him. In the third picture, he looks purty darn happy. Then I kiss him again cause he's just SO cute!

Today Brave Billy got his FINAL "red devil". He's hopped up on steroids right now and feels great from the anti-nausea IVs. He will feel fantastic till Saturday, at which time he will experience his own personal zombie apocalypse with a little of the Book of Revelation thrown in. Poor baby.

DATE FOR SCAN THAT WILL DETERMINE ABOUT A MILLION THINGS IN OUR LIVES: JULY 30TH, A MONDAY. We get the scan around noon in Winston. At 2:30, we will be told by Dr. Thomas, our Wake Forest Oncologist who replaced our beloved Dr. Torti, what the CT scan showed.

GULP!

But, here was a surprise. We were handed our chemo schedule as we left today. I thought, "Chemo schedule? I thought chemo was dependent on what the scan shows." Hmmm. But apparently, no matter what the scan shows: (a) no tumor; or (b) a shrunken tumor; or (c) a tumor that has flourished mightily under the red devil and has grown into its own township, complete with a school system and shopping mall, and its own daily newspaper --no matter which of those the scan shows, they have Bill scheduled for TWELVE WEEKS OF MORE CHEMO! ARGH!

That's three months. ONCE A WEEK! OMGosh. Can he TAKE it? And it's all new drugs: carboplatin and taxol. So we have NO idea yet what these *new* drugs will do to his poor tired hairless nauseated body.

As they said, there are NO drugs known to science that can fight bladder cancer of his type, so they are just throwing darts blindfolded at this point, to be nice. Pin the chemo drug on the donkey.

Lots of folks have said they'd vote for him to quit chemo and have a great time as long as he can. But good luck convincing the ole cowboy of anything. He wants to fight like Chuck Norris in a rodeo full of foam-at-the-mouth bulls. He just wants to fight, fight, fight. 

Well, he gets to make the call. I'll be at his side cheering him on, no matter what kind of path he chooses.

So, in summary: Monday, July 30: scan at Wake Forest. Results at 2:30 pm. Interesting drive home, that will be, I am sure.

Then, two days later, start the new 3-month, once a week regimen of all new drugs. Of course, he can back out if he wants, after we see the scan results.

He's more and more excited about his baby girl coming to visit (well, she can be  29 and still be his baby girl)--we both are excited. Emma Jane is GREAT with sickbed scenarios and got plenty of practice with the cowboy when he was at Duke for 800 years in 2010.

That's all for now. Thank you for your beautiful, deeply touching love letters, and well wishes. You know we can't answer them all, but it doesn't mean we don't read each one over and over and over and feel our hearts lifted up so high by your endless patience and love and PRAYER!

Next post will be this coming Sunday, just to keep on my schedule. Love to you all. Go kiss a puppy. It's fun.