I think the nurse had mercy on me and somehow got the radiologist to at least take a quick initial look at the CT scan, and then she asked our urologist if he agreed.
The good news seems to be that Bill's tumor has NOT broken through the wall of the bladder, "as far as they can see right now." The urologist said it looks like that to him, too.
It is into the wall of the bladder, apparently "up against" the outer wall, but not broken through to the outside.
If this is correct, then Bill is definitely not in stage 4, which requires a complete break-through.
Now I'm desperately praying that it WON'T break through while we wait for the appointment on Sept. 15th.
I was not able to get any more information from the nurse.
Except this next point, which is the most bizarre thing of all, so far: the nurse said that the clinic's "hard drive got stolen" and that's what the problem is. She even said, "Maybe some of the radiology reports were on there, and that contributed to the problem."
Okay, I'm sane, but this whole story of the urology computer situation is like a Salvadore Dali painting, isn't it? The hard drive GOT STOLEN? Was it backed up? Are all the CT scans lost? What the DICKENS?????????????
Anyway, in a saner vein, we also got the packet of information from Duke by mail today, and it mainly talked about how we have to have his records sent there BEFORE we arrive, or we can't have a consultation when we get there. Yikes! I hope all his records weren't on the stolen hard drive. What in the WORLD is going on!?
Anyway, the Duke packet listed hotels and showed a map, but it didn't say whether he might go in for surgery on the next day or anything like that.
So next week, we should get the complete radiology report, assuming it's not sitting in a pawn shop somewhere, and I will post that, no matter what it says. So if I haven't posted it, it just means we didn't get it yet. It doesn't mean it was so upsetting that we couldn't post it. I WILL post it!
Not sure this is the greatest place to be, in America, for serious illnesses.
Tee shirts down here say: "Paddle faster! I hear banjos!"
I hope the radiologist wasn't recruited from a rocking chair on a porch somewhere.
Love,
Beth
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Ken and I hope you are having a glorious weekend with the family. We are thinking about all of you and sending our very best.
ReplyDeleteWe couldn't believe the hard drive got stolen. What are the odds of that happening? So bizarre. And Beth, you keep nagging Duke about getting in earlier. It has been my experience that you need to be your own advocate with the medical establishment and being more assertive gets you further than being passive.
Love to all. Ken and Mary