Tuesday, May 29, 2012

Tuesday is Better!

We are grateful to you and to God and happy to report that today was better than yesterday, in some ways.

Because of a commotion with the dogs at 4:30 am, Bill woke up and took all his meds, so that by 7, when he woke up for good, he felt much better than his past queasy mornings.

His nausea, however, is changing and spreading throughout the day, rather than just existing in the mornings, as it used to.

Fatigue is his other strong problem.

But today, he developed blisters all over the roof of his mouth and in his throat. He's never had this before, but we read about it. Lots of you sent me ideas for helping with that, and we are going to try them all. It does hurt him to eat or drink, but if those little things break (which I'm thinking is next), he will be in trouble, I imagine. I hope it's not like having a hundred open canker sores! (Dianne B: they wouldn't let us do the ice-in-mouth thing during administration of red devil; said the new version of the drug makes the ice no help at all.)

For some reason, I was balancing all the plates, emotionally, until the blisters. For some reason, it was just one too many things. I kind of fell apart the minute he told me, and I spent the day being gloomy--actually the word "numb" is what I felt. I couldn't even eat today. I don't deal with strong emotions too well. I suppress them. Then I either "think" I'm happy, or I mope around. Oh well. I put myself in my room and said I couldn't come out till I could act nice. I never did come out. Still here! haha It's not the blisters that are so upsetting. It's the appearance of something new when I think there was already more than enough going on.

NEWS FLASH: If you would rather receive this blog in your email inbox, I will add your email to my new list. I have about 25 people who've asked to get updates this way, so they get the update within a minute of the blog being written, and don't have to search and fool around looking for the website. Just send me an email and I'll add your name. It's easy. The names are blind-copied so no one sees anyone else's name. I'm beth dot drennan at gmail dot com.

Here's to a better tomorrow! Next Dr. visit is Thursday for blood work. We get the results on the spot, and he either gets a blood or platelet transfusion or magnesium drip or whatever he needs.

We love you, and your love for us is getting us through every day. As in REALLY. Not just saying it.

Love,
Beffie and Billy

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